tag:blogger.com,1999:blog-23119886.post114253777413423510..comments2023-10-23T12:18:58.655-07:00Comments on PegSpot: Trisomy 18Peg Spencerhttp://www.blogger.com/profile/03052139882594799076noreply@blogger.comBlogger50125tag:blogger.com,1999:blog-23119886.post-34090433252089172802014-11-03T09:44:12.209-08:002014-11-03T09:44:12.209-08:00I'm barely 13 weeks pregnant and found out our...I'm barely 13 weeks pregnant and found out our little girl has Trisomy 18 after the nuchal translucency showed a measurement of 4.5mm. My husband and I went back a few days later for the CVS and the space was 5 mm.<br /><br />As a Christian and a Catholic I'm going through a lot but I am at peace. I'm also horrified at the number of comments here and elsewhere applauding women who did not terminate.<br /><br />Who are these people to judge? I have two healthy children, a supportive husband and at 44 years of age I've been knocked to my feet. In His mercy my pregnancy symptoms are starting to slowly fade and I'll end up one of those 2nd trimester statistics. But for the rest of you -- Christ was MERCIFUL and COMPASSIONATE, something some of you know absolutely NOTHING about!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23119886.post-33704770221944955302014-02-23T12:20:01.460-08:002014-02-23T12:20:01.460-08:00Happy Birthday to Faith Victoria! Thank you for le...Happy Birthday to Faith Victoria! Thank you for letting us know, Sheryl. My very best to you, Faith and her family.<br />Peggy SpencerPeg Spencerhttps://www.blogger.com/profile/03052139882594799076noreply@blogger.comtag:blogger.com,1999:blog-23119886.post-9179737970030850002014-02-22T12:50:13.747-08:002014-02-22T12:50:13.747-08:00Hello Dr. Peg.
I wrote you a a few years ago about...Hello Dr. Peg.<br />I wrote you a a few years ago about a family in our church having a Trisome 18 baby.I was upset at the words you used and must say you sent me a very nice response. Well Faith Victoria just celebrated her 5th Birthday and is being potty trained. I also gave them your blogspot address. I don't think I can add a pic of Faith Victoria on here but here is their facebook page. Thank you for at least letting us speak our mind on this subject. Sheryl Menke https://www.facebook.com/jesibradAnnieonBlueBerryHillhttps://www.blogger.com/profile/01626077072998384905noreply@blogger.comtag:blogger.com,1999:blog-23119886.post-86224194650157412082013-12-11T05:17:15.368-08:002013-12-11T05:17:15.368-08:00We have just lost our little one to Trisomy 18. Af...We have just lost our little one to Trisomy 18. After 15 years of trying, muscarrying and failed IVF attempts, our doctors ultimate decision to terminate after many scans and tests has left me feeling guilty and heartbroken. Its an impossible decision to come to terms with. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23119886.post-43916782893933618632013-02-02T12:21:08.691-08:002013-02-02T12:21:08.691-08:00I imagine that with the early blood screening, the...I imagine that with the early blood screening, these stories will become even more heart-wrenching and commonplace. I have been given an unspecified result for Trisomy 18 - neither negative or positive, and am anguished over the decision I may have to make. We declined cvs because of the miscarriage risk, but will probably consider amnio if the 16 week ultrasound shows positive signs. Thing is, everything has been perfect up til this point, or so the doctors have said. It makes me wonder if the u/s tech saw something at my 14 week u/s, prompting her to invite the doctor, who only said everything looked good. What did they see? Why didn't they tell me? <br />I too am scared and heartbroken that I may have to face whether to continue with this pregnancy - I am the main breadwinner. If I were to deliver a very sick baby, what would that mean to our lives? I have to think of the family I have, the ones who rely on me to make the right decisions, to care for them as best I can. It's an impossible choice, and to sit in judgement of others because it's not the one you took for yourself is not the way of God either. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23119886.post-71566530543747476922012-09-16T12:18:14.661-07:002012-09-16T12:18:14.661-07:00Meghan,
Thank you for sharing your beautiful story...Meghan,<br />Thank you for sharing your beautiful story.Peg Spencerhttps://www.blogger.com/profile/03052139882594799076noreply@blogger.comtag:blogger.com,1999:blog-23119886.post-20424058089381839452012-09-15T20:53:40.056-07:002012-09-15T20:53:40.056-07:00I had a baby girl girl Myla last September who had...I had a baby girl girl Myla last September who had full Trisomy 18, I found out at 17 weeks. Choose to go full-term and she was with us myself "her mother", her daddy and two older brothers for over 9 hours. I would NEVER abort! She loved hearing all of us it made her smile and happy, even as a newborn, she knew our voices! I can't possibly imagine not being able to spend the time I got with my baby girl and will forever cherish every moment! Trisomy 18 babies deserve a chance life isn't promised to be long but life should get to be lived!Meghannoreply@blogger.comtag:blogger.com,1999:blog-23119886.post-78427537233327856162012-02-12T16:00:05.537-08:002012-02-12T16:00:05.537-08:00Kathryn,
If you read all the comments above you w...Kathryn,<br /><br />If you read all the comments above you will see me weigh in several times. I have also responded privately to some people who included their contact info.<br /><br />I have learned a lot from all the parents who have posted here, and I appreciate it. As I have said before, my intention was simply to share my experience as a young resident, 20 years ago. I don't judge my patients for the decision they made at the time, nor do I judge parents who choose to continue Trisomy 13 pregnancies. Clearly many have found love and meaning, and I'm happy for them.<br /><br />I also rarely write on this blog anymore. If you look, you'll see the last post was over a year ago. I get informed by email when someone comments. This particular post has gotten the most comments, and one reason I leave it up is that it seems people have found solace here reading others' stories.<br /><br />Thanks for visiting.Peg Spencerhttps://www.blogger.com/profile/03052139882594799076noreply@blogger.comtag:blogger.com,1999:blog-23119886.post-7294274755300318262012-02-12T15:43:19.773-08:002012-02-12T15:43:19.773-08:00Hey Dr. Peg, why no comments on all these parents ...Hey Dr. Peg, why no comments on all these parents who have decided to give their children a chance to live and have found out that the children actually CAN live, CAN have happiness, and CAN give joy to their families? Why so silent?!! I sincerely have been praying for you, that you might humble yourself enough to start doing some real research into this, and educate yourself enough to give your patients factual information from here on out. Then also, that you would humble yourself enough to come on this, your own website, and admit that your lack of understandings might very well have caused undo premature death to that original child that you helped to abort....I say 'helped' because you condoned and participate in the decision and events surrounding it, even if you never touched an instrument. Come on Dr. Peg, weigh in on this conversation that you started on your own blog!Kathrynnoreply@blogger.comtag:blogger.com,1999:blog-23119886.post-42416975200274483372012-02-07T04:12:34.971-08:002012-02-07T04:12:34.971-08:00http://articles.boston.com/2012-02-03/arts/3102635...http://articles.boston.com/2012-02-03/arts/31026358_1_trisomy-genetic-disorder-rick-santorum<br /><br />Republican presidential candidate Rick Santorum stepped off the campaign trail a week ago to be with his 3-year-old daughter, Bella, who was hospitalized with pneumonia. Bella was born with a devastating genetic disorder, Trisomy 18, which means she has an extra, third copy of the 18th chromosome.<br /><br />Nearly half of children born with the condition die within the first three months, and 90 percent within the first year. In fact, Santorum has said in media interviews that he was told not to expect Bella to live beyond her first birthday, calling her road to recovery from the recent pneumonia a “miraculous turnaround.’’<br /><br />Usually diagnosed early enough in pregnancy for abortion to be an option, Trisomy 18 occurs in just 1 in 5,000 to 1 in 10,000 live births.<br /><br />“Many people are familiar with Down syndrome, another trisomy disorder, but babies with Trisomy 18 are generally more intellectually disabled than kids with Down syndrome,’’ said Dr. Mira Irons, associate chief of genetics at Children’s Hospital Boston.<br /><br />Many kids with Trisomy 18 who live beyond a few months never walk or talk, and they require constant care.<br /><br />But there’s been a shift, Irons added, in how physicians address medical problems in those born with the condition. “When I first started my training, quite often, we just provided supportive care,’’ she said, rather than putting a baby through major surgery to repair organ problems that often accompany the disorder like a heart or liver defect. “Over the past five to 10 years, that practice has really changed.’’<br /><br />Many now undergo extensive surgeries, which increases their odds of living past their first birthdays, and some, aided by extensive therapy, learn to communicate on a basic level with their loved ones. “I’ve heard parents say their kids are happy in their own way and are leading well-cared-for, meaningful lives,’’ said Irons.<br /><br />THANKFUL THAT MORE TRISOMY 18 CHILDREN ARE BEING VIEWED IN A POSITIVE LIGHT. THANKFUL THERE ARE DOCTORS WHO SEE THE LIVES OF THESE CHILDREN VALUABLE AND ARE WILLING TO HELP THEM.Marshahttps://www.blogger.com/profile/14217608349818469039noreply@blogger.comtag:blogger.com,1999:blog-23119886.post-42410487257660736762012-01-26T16:46:50.704-08:002012-01-26T16:46:50.704-08:00reading this blog upset me....... no offence but y...reading this blog upset me....... no offence but you are a classic case of someone who went to medical school and lost your humanness along the way, it might not be your fault considering you probably read abput T18 in one class course and it ended there.<br /><br />there is a community of thriving T18 children all over the world. these children are not " incompatible with life" , if u are indeed human you do your own research and realise you have erred.<br /><br />I have a little girl with T18, born 2006 and she is alive and not incompartible, she is not in agony, she is a fiesty, diva, and very special. So if my math serves me right, she will be 6 this august!!!!!! <br /><br />she has frenz in the US, UK, Japan, China, Mexico...........Many frenz ranging from a few months or days old to some in their 20's..... Now i am sure you wont find any medical journal publishing that..your dated research and uneducated blog on T18 makes parents make decisions for babies that could have thrived. I am sure somewhere in history T21 children were aborted more than we will ever know because they were not "perfect" granted some of them have gone on to live good lives and tell amazing stories. <br /><br />doctor Peg feel free to attend a conference in July 2012, where a few doctors who indeed have human compassion and believe our children can thrive come to meet our children, they see for themselves that the literature they read in medical school was not accurate, that we live in a society that indeed practices eugenics .... So mark your calendar Doc, if you are in the US its JULY 2012 18- 22 in St Louis Missouri <br /><br />http://www.trisomy.org/conference/Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23119886.post-72618795416968442222012-01-22T22:02:02.244-08:002012-01-22T22:02:02.244-08:00Dear Doctor,
The gross part you mention is that y...Dear Doctor, <br />The gross part you mention is that you told these parents their child would die in agony when you had know way of knowing that. The other gross part is that the parents were not allowed to see their daughter. So sad they will never know what it would mean to hold her. Say Good bye. This whole story is so much sadder than it would have been if you had not interfered. Yes I know we are talking about T18.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23119886.post-3361129370069921802012-01-21T09:30:13.327-08:002012-01-21T09:30:13.327-08:00Wow...not sure where to even start with this. I a...Wow...not sure where to even start with this. I am currently sitting next to my 3 year old daughter with Trisomy 18 and Monosomy 21 so I certainly understand the struggles of this condition. I also understand far more about these children than you likely ever will because your view of life stinks. You are typical of far too many doctors who are out there giving deceptive advice to parents. You tell them that they would be better off exterminating (murdering) their child than having the child and living out the results. Well, I can testify that we are far better off having gone through this experience. If our daughter were to die today, we would be sad and heart broken, but I could not imagine the guilt I would be experiencing now if we had listened to the corrupt genetics doctor who encouraged us to have an abortion several times even after we made it very clear abortion was not an option. <br /><br />I read dribble like this and understand why our nation is so screwed up. It sickens me that 90% of Downs Syndrome children are aborted. These Trisomy 21 children are not normally impacted nearly like my little Faith, yet doctors encourage their parents to murder them in the womb so they won't have to deal with the problems. Sadly people listen to this foolishness and the result is a society that has little value for life. We have allowed our country to deteriorate and are quickly moving toward a life view much like Hitler's Germany. Don't sneer at my comment, but do a little research to know that Hitler's ideology was the same as Margaret Sanger, the wonderful founder of Planned Parenthood. She was a perverse woman who believed in eugenics and pushed for this practice in America. Margaret Sanger on the rights of the handicapped and mentally ill, and racial minorities:<br />"More children from the fit, less from the unfit -- that is the chief aim of birth control." Birth Control Review, May 1919. Margaret Sanger on blacks, immigrants and indigents:<br />"...human weeds,' 'reckless breeders,' 'spawning... human beings who never should have been born." Pivot of Civilization, referring to immigrants and poor people. These ideas are still alive and well as you can see from this original post.<br /><br />As I write this, I just watched my Trisomy 18 daughter reach up and touch her older sisters cheek. She smiles and cries, laughs and experiences pain. Does she struggle? Sure, but as my wife points out frequently to doctors and nurses we were all born to die. We will all struggle in this life and face tribulation. If you are a parent facing this type of situation, please don't listen to this wrong thinking and horrible advice. Our job as parents is not to be selfish, but selfless. There is a much greater reward in working through these troubles than trying to avoid them and living with the heartache and guilt of an abortion. The doctors don't know what your child's life will be so don't trust them when they say you're better off killing your child. We were told our daughter would not live, but have discovered a large part of Trisomy 18 children not living is an unwillingness to treat their problems. We have found doctors who will help and our daughter is doing better all the time. There is hope even in the struggle. Check out our story at www.littlefaithtobigfaith.blogspot.com and do what is right, not what feels right.FAITHhttps://www.blogger.com/profile/01461761958590582201noreply@blogger.comtag:blogger.com,1999:blog-23119886.post-1109352678839404642012-01-20T04:45:37.021-08:002012-01-20T04:45:37.021-08:00i am the grandmother of lilly, the trisomy 18 baby...i am the grandmother of lilly, the trisomy 18 baby mentioned in JPD's comment. lilly lived to be 17 months and was a happy child who blessed us all. i thank God my daughter and son-in-law saw value in lilly's life, as she was created by the Lord God and fearfully and wonderfully made. through lilly's blogspot (http://pray4lilly.blogspot.com), she touched thousands of lives across the world. the Lord created her for a purpose and when that purpose was fulfilled, He took her home. we love to talk about how she is now healed and can run, talk, and laugh and is with her beloved pop who went to heaven a few months before her. <br /><br />lilly was born on july 4, 2010 and for the first hour we did not think she would live. but her fighter's spirit prevailed and she was nick named "the little firecracker." her life and her story is one of incredible love, faith and blessings to all who knew her or followed her blog. <br /><br />the value of life is not determined by our chromosomes, or compatibility, or our perfectness. our value is determined by love. and lilly was not only deeply loved, she loved her family as well.<br /><br />thank you Lord for the special gift you gave us. thank you for allowing her to stay with us 17 months and for all the lessons she taught us and the love she brought us. we are all better people because of this little trisomy 18 girl.Marshahttps://www.blogger.com/profile/14217608349818469039noreply@blogger.comtag:blogger.com,1999:blog-23119886.post-5135784089491181982012-01-14T16:43:41.002-08:002012-01-14T16:43:41.002-08:00Dr. Spencer,
I appreciate that your actions and t...Dr. Spencer, <br />I appreciate that your actions and the information you provided represent a conscious intent to do your best for this couple, whose baby could not be fixed from all her problems. <br /><br />With respect, I have to question whether the decision made by this couple was based on informed consent. You wrote that the child would die "in agony." I wonder how significant the vision of their child dying in agony was to this couple who chose termination. Is this true information? I am familiar with the literature and I can't find any reference to this. The support groups on the internet allow for parents to get a first hand view of the lives of these children. They are actually happy little beings. The spread joy. They enrich the lives of families, even if they live only hours long. <br /><br />I had a baby with trisomy. I suppose my child's doctors were like you, in that they truly wanted to do what was best for my family and for my child. According to their values, it was best for all if she was dead. When she was just a few months old (two days after her first smile) she had respiratory distress and came to the hospital. The doctors told us things that caused us to believe that our child would suffer as surgery she needed was not in her best interest. A short time later, she died.We made the right decision, but it was not based on the truth. <br /> <br />We asked the Coroner to investigate because all the final records were missing. Something was wrong. The Coroner said my child's death was not certain and she did not need the surgery described. We don't know where the records or the lethal narcotics withdrawn went to. Death was consistent with the manner of death if someone had an overdose of narcotics. <br /><br />Paternalism is no longer an option when it comes to children with trisomy 13/18. The truth is out there, all over the place. Parents will discover it if they choose. When the truth comes too late, it is devastating.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23119886.post-69765487709961037472011-03-07T15:03:07.136-08:002011-03-07T15:03:07.136-08:00I was very dismayed reading this.
It is very wron...I was very dismayed reading this. <br />It is very wrong that the medical profession gives out information which is incorrect and untruthful. Most of their advice is based on very outdated papers and statistics and indeed ignorance.<br />Truth is the medical profession can not possibly know how long a baby with t18 will survive. <br />I was given no hope at all when I was told my baby girl had full t18 at 23 weeks into my pregnancy.<br />After much researching and agonising I chose to carry my baby and she was born at 42 weeks naturally and survived for 13 weeks. She lived at home with us and we had one wonderful summer with her. She passed very peacefully in my arms. I would not trade that time for anything in this world.<br />We desperately wanted our baby to have her heart defect repaired but we could not find any supportive doctors in the UK. We as her parents were not allowed to make decisions for our daughter and that is so very wrong on every level.<br />So medics please aknowledge that these very special babes can and do survive and bring imeasurable love to their families. The information given to parents shouldn't be so totally negative.<br />Although I respect everyones decision, I am so very glad that I did not end my pregnancy early.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23119886.post-70496207491437589382011-02-06T16:39:52.660-08:002011-02-06T16:39:52.660-08:00Anonymouses and JPD Blogger,
Thank you for sharing...Anonymouses and JPD Blogger,<br />Thank you for sharing your heartfelt and difficult stories.Peg Spencerhttps://www.blogger.com/profile/03052139882594799076noreply@blogger.comtag:blogger.com,1999:blog-23119886.post-42951128634492545092011-02-06T13:34:30.989-08:002011-02-06T13:34:30.989-08:00I as well was pregnant w/ a Trisomy 18 little girl...I as well was pregnant w/ a Trisomy 18 little girl. We knew that we did not want to terminate the pregnancy, because my husband and I believe that God is soverign, and that he is the creator of life. He has purposes that we don't always understand. After learning as much as possible about Trisomy 18, we had to fight with the OB's in order to not have an amniocentesis done, and to plan to deliver our little girl at a hospital where she could have access to the care she might need at birth. We knew she had a heart defect, and weren't sure about her swallowing reflex (as I had lots of extra amniotic fluid). She died in utero at approx 32.5 weeks. I felt such disappointment that we weren't able to deliver her alive. I did deliver her though, on October 26, 2010, and was able to hold her, take pictures, etc. I did not understand the part of your story where the parents were "forced" to not see the baby. That is just a crazy attitude. Our baby, Sheryl Grace, was a beautiful creation, not a mutant child, or a defective life. She was just as God had intended for her to be.... I still do not know what God's purpose was for our little Sheryl, but I do know that although I have six other children (from 19 to 5), I will never have the same view of God's miracle of creation again. When we were going through the pregnancy, I saw our parental role as the "protectors" of our baby. The doctors insisted that she would not be able to live, that there was no point to try to give her life. But, as you can see from these few other posts, some children do live with Trisomy 18. And whose to say how many more would live if they were not aborted, or only given "comfort measures" at birth, instead of the care we give other "normal" children at birth, when they have trouble breathing, etc. I am grateful that my doctors gave me the facts about Trisomy 18 and did not try to sugar coat the issues, but I also feel that given those statistics, my husband and I should have been able to say that we wanted every chance given to our daughter to survive at birth, instead of having to fight with the medical establishment to find a doctor and a hospital that would give our child at least a chance to survive. I know of a Trisomy 18 baby girl named Lilly that lives in NC, born in July, but after having lived 2 months could not find any doctor to operate on her heart to allow her to survive. She came here to Jackonsville, FL to Wolfson Children's Hospital in order to find a team of heart surgeons that would even consider Lilly's case. I met with one of these doctors as well during my pregnancy, and they have a most refreshing attitude toward these children to treat them "on a case by case basis, to help them if possible". This is all a parent could ask!!! Lilly's blog can be found at http://www.pray4lilly.blogspot.com. I apologize for my ramblings, but have not written about these issues since Sheryl Grace was still-born. We will miss the chance to care for her, but feel that God's will is always best. I will pray for all of the mothers who have written here, because I know first-hand that there is nothing easy about dealing with these kinds of issues, and we all need God's love and grace in order navigate through our lives.JPD Bloggerhttps://www.blogger.com/profile/05265071719457480820noreply@blogger.comtag:blogger.com,1999:blog-23119886.post-48825687184321348082011-01-03T00:32:56.156-08:002011-01-03T00:32:56.156-08:00I was 18 weeks pregnant when I found out my baby g...I was 18 weeks pregnant when I found out my baby girl had trisomy 18.... my boyfriend and I were devestated. I was going to nursing school and he was in culinary arts. We were just passing our 7 year anniversary when we found out about our princess. We decided to terminate our pregnancy and its been so hard to move forward. Thank you for sharing the story... everyday is a struggle and its comforting to know someone else knows how I feel.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23119886.post-35439195506375013012010-12-31T17:06:48.583-08:002010-12-31T17:06:48.583-08:00Oh, I just stumbled upon this article as I was sea...Oh, I just stumbled upon this article as I was searching for info. about Trisomy 18 because a friend of mine is pregnant with a baby with this diagnosis. This article just breaks my heart. I do not stand as a judge before these women that have chosen the choice to take the life of their babies. I am not God. But I do know that we serve an Awesome God that tells us He knits us together in our mother's wombs. And I know that nothing is impossible for Him as we seek Him for all things. We may not understand everything on this earth, but He is the Creator of life and death, and I do know that we are to allow Him to be the author and finisher of the life He has created. He is good, and His ways are far above our ways. I pray for all hearts to be healed in these situations and for peace that can only come through Christ and in Him alone. If anyone is struggling with a decision to end their babie's life, please turn to God for the answer and choose life. And for anyone that has already made this sad decision, there is hope in Christ and in Him alone. He can take your ashes and turn it into beauty. Turn to Him, and He will set you free. He loves you more than anyone in this world, and His desire is to save you and give you abundant life in Him.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23119886.post-1274140781915142762010-11-14T21:41:57.621-08:002010-11-14T21:41:57.621-08:00My baby girl Camila was diagnosed with Trisomy 18 ...My baby girl Camila was diagnosed with Trisomy 18 two weeks after she was born. She was born with a heart defect and my pediatrician suggested genetic testing. She was born July 26, 2010 and is now close to four months. I elected not to be tested during my pregnancy because I did not want to make the decision to terminate. She is home with us and we have the assistance of hospice. She now needs oxygen and medications to be comfortable. Camila is a beautiful little girl who I will miss with all my heart. Not knowing how much time we have with her is so difficult for us. I have requested a leave of absence from work because I need to be with her until the end.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23119886.post-44956997041007375332010-09-21T10:25:34.358-07:002010-09-21T10:25:34.358-07:00I just want to say that no woman going to an abort...I just want to say that no woman going to an abortion clinic deserves to be hassled. I know you probably didn't mean it the way it sounded, but while I agree Caroline didn't deserve to be hassled, no woman should have to deal with protesters when she goes in for an abortion, whether that is an "elective" eight week abortion or an abortion of a child suffering from a life threatening disorder. Please understand that.Morgainenoreply@blogger.comtag:blogger.com,1999:blog-23119886.post-25268864427904371532010-08-26T10:22:28.944-07:002010-08-26T10:22:28.944-07:00One year ago today, I said goodbye early to my son...One year ago today, I said goodbye early to my son with Trisomy 18. My story is almost identical to that of Alex'sMum. Carrying him to term would have jeopardized the life of his twin sister -- and we were faced with a decision that no one should ever have to make. We couldn't stand the thought of losing both babies, despite the fact that both of them were wanted more than they will ever understand. <br /><br />I just wanted to say that I found this story today and it caused the tears to fall that had been welling up inside all day long. I love both of my children so much, and while I live to see my daughter smile every day, there's an empty hole in my heart for my lost son. Not a day has gone by that I don't grieve his loss, and I hope I will meet him someday again.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23119886.post-68203300084129197932010-06-30T20:11:37.695-07:002010-06-30T20:11:37.695-07:00Ana,
My heart goes out to you and your family. I&...Ana,<br /><br />My heart goes out to you and your family. I'm glad you found this site, mostly for the stories from the other parents who have faced the same situation. Thank you for commenting, and may you find the best decision in your heart.<br /><br />PegPeg Spencerhttps://www.blogger.com/profile/03052139882594799076noreply@blogger.comtag:blogger.com,1999:blog-23119886.post-37436867396380330912010-06-30T19:39:41.907-07:002010-06-30T19:39:41.907-07:00Just found out at 12 weeks that my little girl has...Just found out at 12 weeks that my little girl has trisomy 18. We are still in shock and trying to decide how to proceed from here. It is funny but I feel like I love her even more after finding she is so sick and malformed. Frankly both options scare the hell out of me. I hope things becomes clearer as the days pass and the reality sinks in. Thank you for this post and for all the different comments. It has been comforting to hear from other people who have been in our position.Anahttps://www.blogger.com/profile/16870601977723962983noreply@blogger.com